At age 22 while living in Mongolia I developed a severe chronic pain condition that effects every aspect of my life. Continuing this blog reminds me that life's challenges are stepping stones meant to lift us, not roadblocks meant to defeat us.

Monday, August 2, 2010

Health up-date

We still don’t have a name for whatever is going on with me, but the doctors have been great and have done a bunch more tests. More ultrasounds, blood work, acupuncture trials, and referrals are in for the next few weeks, i’ll keep you posted and let you know if we find anything out. My reflexes are still hyperactive and I have weird little muscle contractions and spasms throughout my back, ribs, arms and legs that suggest something neurological, and my pain sensors are still revved up, especially on my right side by my ribs. The neurologist said some infections and viruses can cause damage to the central nervous system, so maybe that happened. A GI doctor says my liver is very firm and might be enlarged so we are looking more into that too. We have ruled out anything rheumatologic we think. The plan is for me to see doctors at the University of Utah when I get to Utah in a few weeks, and maybe go to a pain clinic. At this point I am totally okay with us never finding out what it is as long as it goes away ;) We will see how college goes, I won't be able to have the life style I used to but I should be able to at least make it to class. Whether or not i'll be able to focus in class is pending haha ;) I'm excited to see family in utah soon! love you all!

1 comment:

  1. we think they should name your disease after you. then you will be in medical textbooks instead of just toilets. :)